GET CONNECTEDGet Connected Logo

We are excited to invite you to the newly launched “Get Connected.” It is the Sickle Cell Disease Association of America’s (SCDAA) National Patient Powered Registry. There is power in numbers and we want the St. Louis Metropolitan sickle cell community to be well represented. Your input through “Get Connected” will help us to identify critical needs. But more importantly, your voice can inform and support vital research and lead to the development of much needed care improvement guidelines.

The registry is FREE and confidential.  Once you register with your basic contact information, you will receive a verification email link that allows you to go back into the registry to complete your profile.  You can choose to connect with your local SCDAA agency; for example, the (St. Louis) Sickle Cell Association.  The Sickle Cell Association will give priority for resources and programs to those who have completed profiles in the Get Connected Registry.

Feel free to contact us for more information.  Otherwise, click here to Get Connected.

Get in Touch

5615 Pershing, Ste 29
St. Louis, MO 63112

Phone: 314-833-6751
Mailing Address
Sickle Cell Association
P. O. Box 2751
Florissant, MO 63032


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*Your privacy is valued. Your email address will not be shared with anyone, and opt-out requests will be honored immediately.

©Sickle Cell Association 2016
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