
Who We Are
The Sickle Cell Association is a Missouri-based organization supporting warriors, caregivers, and families living with sickle cell disease. We provide wraparound support, plain-language education, and advocacy—because thriving with SCD takes a village, and everyone in that village deserves care.
Sickle Cell Education
Understanding sickle cell disease, trait, and treatment options is essential. Access reliable, plain-language information to make informed decisions for you and your family.
Questions About Sickle Cell Disease?
We provides free, confidential guidance for warriors and families to understand diagnoses, treatment options, and what to expect.
✓ Understanding test results & diagnosis
✓ Gene therapy eligibility & process
✓ Managing pain without stigma
✓ School & workplace accommodations
✓ Pregnancy & family planning
How We Help
Support for warriors, caregivers, and families at every stage of the journey
Stories of Strength
Real voices from warriors, caregivers, and families
Our Impact
Making a real difference in the lives of Missouri families
1,400+
individuals reached
150+
supported clients
678
total services delivered
96%
now have a medical home
Community Built on Partnership
Working together with leading healthcare institutions to serve families across Missouri






Upcoming Events
Connect with our community and access resources
Latest Updates
Behind every cure is a caregiver. Behind every survivor is a story.

.png)










